Coping with chronic illness is very very stressful for every member of the family. The person who is affected by the disease certainly is effected and every other member of the family is as well and often the unaffected members of the family have needs that do not get met as the family struggles to meet the increasing needs of the affected member.
In 2009, I was asked to write an article for an online support group published by the Wiskott-Aldrich Syndrome Foundation and co-sponsored by The National Institutes of Health, in order to provide information and support to the individuals and families that are affected by Wiskott Aldrich Syndrome.
This article is not specific to this particular disease and what I have written can be applied to any illness or injury. I hope you will take a look